2024 Chelsea's Hope Awareness Campaign

Kick-start funding the first safety study for Lafora patients!

Campaign Ended

Campaign cover image for 2024 Chelsea's Hope Awareness Campaign

Organized by Chelsea's Hope Lafora Children Research Fund

$84,852

114 Supporters

113% of $75,000 goal

Final Day MATCH

Chelsea's Hope staff and Board will match donations up to $800 for the final 24 hours of our campaign! Every contribution will go to the Safety Study.

$800 match complete!

Kit Donohue

Fundraiser since Aug 2024

Share Kit Donohue's Page

$3,750

5 supporters

187% of $2,000 goal

Kit Donohue's Story

Currently, Lafora patients and their families face many challenges. Beyond the initial diagnosis and finding information about the disease, there are no treatments available to stop the progression of this devastating disease. Chelsea’s Hope is working to make life easier for Lafora patients and their families, as well as invest in the science that leads to treatments and cures. The first-ever clinical safety study for Lafora disease will begin enrolling patients in the fall of 2024! As a scientist who studied Lafora disease, I have spoken with many Lafora patients and their families. They all share the same struggles to find care, and they all share the same hope -- that a treatment for Lafora disease can be realized when we all work together. Your contribution today will help Chelsea’s Hope fund the clinical cost of the safety study and help our entire community change the future for Lafora patients. Your donation to Chelsea’s Hope is fully tax-deductible and brings us a step closer to a cure for this disease. You’ll be giving hope to the worldwide Lafora community with your gift. Chelsea’s Hope is helping to change the future through clinical trials. Patients will be monitored closely, allowing doctors to better understand disease progression and clinical biomarkers, advancing diagnostic and treatment guidelines. As treatment development accelerates, we can more quickly translate those advancements to families so that our loved ones with Lafora disease get the most appropriate treatment and care.

Team Leaderboard

Community

7 members

$49,747

Chelsea's Hope Team

8 members

$24,565

raised of $20,000 goal

Chelsea love

1 member

$4,730

cosmo

1 member

$1,330

Viet Nguyen

1 member

$230

Team Members

Niki Markou

$11,850

8 Supporters

Kit

$3,750

5 Supporters

Christine

$1,705

8 Supporters

Jenifer

$2,150

3 Supporters

Meredith Williams

$760

7 Supporters

Lena

$2,500

2 Supporters

Nadia

$550

2 Supporters

Frank Harris

$500

1 Supporter

Story

Campaign Ended

$84,852

114 Supporters

113% of $75,000 goal

$250

Niki Markou received a $250 donation from Vasiliki markou in honor of Angelina Lati

5 months ago

For the kids Lafora

Christine loved this

Christine

5 months ago

$6.2k

Nora Belalouache received a $6,201.83 donation from Nora Belalouache in honor of Yanis Belalouache

5 months ago

🙏 To save my beloved son Yanis❤️ To work towards a cure for you and all others who are affected. We all love you so much and are standing here with you every step of the way. You're in our prayers. ❤️ Love you forever and always. ❤️

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