ION283 Safety Study

Fund treatment for Lafora disease!

Organized by Chelsea's Hope Lafora Children Research Fund

$64,104

61 Supporters

52% of $123,000 goal

Rare Disease Day Match

Donate today and double your impact! The team at Chelsea's Hope is matching gifts for Rare Disease Day.

$1,000 match complete!

Kiga Georgiou

Fundraiser since Feb 2025

Share Kiga Georgiou's Page

$2,910

34 supporters

582% of $500 goal

Kiga Georgiou's Story

My niece Angelina has this devasting disease named Lafora disease and I want to help find a cure. Unfortunately, Angelina cannot take advantage of this new treatment but me and my family are dedicated to stop children from suffering and continue the fight.

Kiga with her niece Angelina before her decline

On Wednesday March 19th, 2025, I will be hosting a morning tea at my workplace to raise much needed funds.

To learn more, view this fundraiser page or go to chelseashope.org.

*Please note that all donations are in US dollars as it is a US non profit organization.

Follow her story on social media @laforainitiative

Here is one of her latest videos that was shared on social media

Update from Angelina's mum with Chelsea's Hope Lafora Children Research Fund

Team Leaderboard

Chelsea's Hope Board of Directors

4 members

$59,918

Community

2 members

$2,910

raised of $0 goal

Chelsea's Hope Staff & Volunteers

2 members

Team Members

Kiga Georgiou

$2,910

34 Supporters

Fatos Malaj

0 Supporters

Story

$64,104

61 Supporters

52% of $123,000 goal

Campaign Update

4 days ago

Two thirds of the way there! | Fully fund the Lafora safety study!

ONE MILLION + RAISED

We are SO CLOSE to funding the seventh patient in the safety study!

The Lafora community has crossed the one million dollar mark in support of the ION283 safety study today.

And your contributions are changing lives! There are six patients currently enrolled. Four have received a dose of ION283 and one patient has been treated twice.

We want to celebrate our accomplishments, but we can't stop now! We have to enroll the remaining four patients.

Thank you all for your continued support and generosity. Together, we fight Lafora.

Anonymous loved this

$6.05k

Niki Markou received a $6,050 donation from Historic Performance, Eco Perfromance Tuning, Fresh Finish, KP Performance in honor of Angelina Lati

3 days ago

We all got together in honor of Angelina Lati to raise money for the safety study to find a treatment/cure for Lafora disease. 4 small businesses hosted by Ange's Uncle Kypros Markou. Historic Performance, Eco Perfromance Tuning, Fresh Finish and KP Performance.

Anonymous and 3 others

Christine Thank you so much!

3 days ago

$10k