Big Beautiful Life brings us together to honor Addi (Click here to learn more about Addi, 15A1). Taken from the world too soon, she was a role model to all with her Indomitable spirit. Informed and shaped by our shared journey with Addi, we honor her legacy by continuing to share memories as well as spread her powerful messages and inspirational story. While achieving our mission, we will focus on:

Things & people which brought her joy and helped her thrive
Facilitating joy for children in medical crisis & their families
Bringing awareness, resources and advocacy to those who helped Addi thrive so they may help others may do the same
Supporting those who embody her passion and purpose for helping others, finding joy and overcoming significant barriers with an indomitable spirit
Helping others navigate the cruel issues she and her loved ones faced so they too can live a big beautiful life
Raising awareness regarding medical complexity, rare & novel disease and navigation of health issues & care systems...and, of course, volunteer fire service

Big Beautiful Life Inc.

Spreading joy to children in medical crisis, helping their helpers & raising awareness about medical complexity.

Adventure Chair Program New

2024 Run Walk & Roll