About Neurofibromatosis

NF refers to a group of genetic conditions that cause tumors to grow on nerves. These are lifelong conditions that affect all populations equally, regardless of gender, race, or ethnicity. People who have NF can lead full lives, but they often require specialized medical care by a team of healthcare providers familiar with the disorder. One type of NF does not change into another type.

Neurofibromatosis type 1, or NF1, is the most common form of NF, occurring in about 1 in every 2,500 births. NF1 is most often diagnosed in childhood. However, even though individuals have NF1 when they are born, it may not be diagnosed right away because some manifestations (signs or features) only appear over time. In addition, some healthcare providers not familiar with early NF1 manifestations, may struggle to recognize important features.

Spread Awareness In May

May is NF Awareness Month, a time for all supporters in our community to harness their power, drive awareness, educate those around them, and most importantly raise money to support research that will lead to effective treatments.

Event to End NF with Emily Nicole

Help us raise awareness & crucial funds for research to End NF!