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2023 I CAN MOVEment

Join the MOVEment to Cure VCP Disease


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Organized by Cure VCP Disease, Inc.


134 Supporters

183% of $20,000 goal

Miles Prokop Family

Fundraiser since Apr 2023

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13 supporters

158% of $2,000 goal

Miles Prokop Family's Story

May 2023 

Hello, Leah Miles here!

I have dedicated my life to non-profit and ministry work. I partner with the most amazing people and organizations, and I feel truly grateful for the opportunity to serve with them.

I select one charitable organization each year to be the recipient of my personal fundraising efforts. In 2023, I am choosing the Cure VCP Disease I CAN MOVEment. I plan to ride my bike or walk each day (from this day forward) because I CAN... We must not take for granted what our bodies CAN do NOW! This cause is personal, so read on to find out why I am partnering with the Cure VCP Disease organization.

I am doing this in honor of one of my favorite people, my Uncle Dave Anderson. Uncle Dave rode his bicycle for many years across the state of Iowa in the famous Ragbrai cycling event... He biked 500 miles each year in the event (not to mention training for it), and then when he could no longer ride his bike, he served as support for those who needed help along the route. I salute my Uncle for all the I CAN's he did! He showed me how to live life and live it to the fullest!

My Uncle Dave has a great zest for life and has the biggest heart. Some of my fondest childhood memories are the times I shared with my Uncle Dave. He always made time for me and my brother. He created the magic that happened during Christmas. He dressed up as Santa Claus every year, contributing to my belief in Santa until I was twelve years old. Uncle Dave built snow forts with us in the winter and went fishing and swimming with us during the summer. He even hitchhiked when he was 18 years old (yes! He was a rebel) from Iowa to Florida to come and visit our family. Uncle Dave has always been brave, fun, and adventurous. I remember him helping my dad build our tree fort and then playing with us for hours in it. Uncle Dave was so cool and still is!

As I grew older, his love and care didn't stop. We have danced, listened to live music, played cards, enjoyed great meals, and one of my favorites... have gone mushrooming together.

Uncle Dave is a good husband, father, brother, uncle, cousin, friend, and retired business executive. He had a thriving career and during the process went back to school to continue his education. He demonstrated by leading and is a perfect example of the importance of being a life-long learner. So, not only is Uncle Dave fun but he is smart, talented, and a leader in all of his endeavors.

Life is slowing down for my dear Uncle. Yet, he is still young, in his sixties, and only nine years older than me.

Uncle Dave is suffering from a rare disease that has very similar symptoms to patients with VCP disease. He doesn't have VCP disease but is affected by extreme Myosistitus (SIBM and PMR), a muscle weakness. He is having difficulty raising his arms, climbing stairs, and walking without assistance. It is impacting his core and legs and will eventually affect his respiratory and heart muscles.

His suffering is a tragedy. My fun-loving, athletic, generous, intelligent, handsome, talented, larger-than-life Uncle can't do the things that he once could but I CAN use my voice and influence to help him and others impacted by muscle disease.

I am asking for your support to help find treatments and cures for muscle disease. Please be generous in your giving to help bring patients and doctors together to help one another and drive research towards treatments and cures, for people like my Uncle Dave.

Join me in the I CAN MOVEment because you CAN!

Thank you for your generosity and support!

With gratitude,

P.S. - I pledge to match every donation given in honor of Uncle Dave. So, give and give abundantly, for such a time as this!


Join us as we turn "I CAN'T" into a "I CAN" MOVEment to cure VCP disease.

It's a virtual Move-A-Thon that culminates the week of June 18-24.
Here's how it works:

1. Each team member picks an individual movement challenge: Walk, Run, Bike, Swim, Finger-Raises, Wheelchair-Miles...anything that gets you moving.
2. "Sign-Up" to participate by clicking the button above to create your personal page and story. (You can create your own team by clicking sign-up next to "Team Leaderboard" or join someone's team by clicking sign-up next to "Team Member").
3. Record yourself with your cell phone doing your challenge and make sure to share with the world!
4. Like the ALS Ice Bucket challenge, share your I CAN DO challenge across Facebook, LinkedIn, Instagram, and e-mail!
5. Individuals that raise over $250 will receive an athletic shirt to commemorate the event!

We have a donor that has offered to match all donations up to $10,000! 
Let's invite our family and friends to join our team as we celebrate what we CAN DO! We all have challenges, especially when facing a rare disease and rather than focus on what we can't do, we want to celebrate what we can do!

Most people still don't understand the burden of VCP disease and this is a great chance to highlight your challenges and show the world what you CAN DO! This can raise awareness and donations as we move towards our goal of a cure for VCP disease.

Here's some examples of movement challenges:

For those with a disability:
-"I can't run a 5K, but I can walk 500 steps this week."
-"I can't walk a mile, but I can walk three laps in the pool."
-"I can't lift a 4 lb weight, but I can get 10 spoonfuls of cereal to my mouth."
-"I can't run, but I can bike a mile."

For those without a disability:
-"I can't imagine not being able to walk, but I can raise awareness by walking for a cure."
-"I can't imagine what it is like living with VCP disease, but I can bike 20 miles for a cure."

Donate or sign-up to participate today.

About Our Organization:
Cure VCP Disease is a patient advocacy organization dedicated to driving the development of a cure for valosin-containing protein associated multisystem proteinopathy. It also known as IBMPFD (Inclusion Body Myopathy, Early Onset Paget’s Disease of Bone and Frontotemporal Dementia), but we call it VCP disease. It is hereditary and adult-onset, meaning that symptoms of the genetic mutation are not seen until a person is in adulthood. VCP disease can affect any combination of a patients’ muscles, bones and brain and can cause degenerative diseases including ALS, frontotemporal dementia, Parkinson’s, and Charcot-Marie Tooth. This devastating disease runs in families, and it is our mission to stop it.


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134 Supporters

183% of $20,000 goal

Cure VCP Disease, Inc.

A 501(c)(3) Public Charity

EIN 82-4368871