Please Support Team Reese!

Dear friends,

I'm a proud part of the TBRS Community since I was diagnosed with TBRS last April.  The TBRS Community is improving the lives of children and families impacted by Tatton-Brown Rahman Syndrome by supporting cutting-edge research and collaboration among medical professionals and strengthening the community through worldwide awareness.

By funding research, the TBRS community is working to uncover and understand the function of Tatton-Brown Rahman Syndrome, the trajectory of this rare disease, and possible therapeutics. Through the TBRS patient registry, we are able to gather data that allows researchers and clinicians to analyze this syndrome and publish updates, leading to better treatments for patients, like me.

The TBRS Challenge is a "Move-A-Thon" that raises money for TBRS while promoting a healthy lifestyle and raising awareness.  This year we hope to raise $25,000 collectively to enhance our patient registry: propelling the research forward by creating a deeper understanding of TBRS, developing new treatment goals, and advancing care of loved ones. 

My goal is to raise $1,500 to help the TBRS Community as part of the 2024 TBRS Exercise Challenge. I will commit to exercising for forty-five minutes each day throughout the month of April.  

Will you please support me and help me reach my goal with a donation to my personal fundraising page today https://givebutter.com/TBRSChallenge2024/team-reese/margaretbernier? Donations of any size will all add up to big change for our tiny and rare community.

If you have any questions about TBRS as a rare disease or about the TBRS community or (how to donate to my campaign) please let me know.  With the help and support from family and friends we are closer to finding a cure.  Thank you for supporting me.

Love,

Reese Bernier and Family