*Gene Therapy*
Davis is a 5 year old energetic, loving and joyful boy with a diagnosis of CTNNB1 Syndrome. CTNNB1 is a rare disease that comes with many challenges that affect those like Davis. These challenges include global developmental delays.
With that said, we are reaching out to our amazing community to ask for your support to help find a cure.
Both within the US and internationally there are teams of medical professionals and parents working tirelessly to find a cure for this condition.
Looking ahead to 2025 there is great hope that the current clinical studies will produce results that will support human clinical trials. In order for all of our Dragonflies to have an opportunity to receive lifechanging care, we are doing our part to help raise money. We humbly ask that if you are reading this that you consider donating any amount to help fund this great cause and support our wonderful CTNNB1 kiddos.
Thank you!
