Mia was diagnosed with Glut1 Deficiency Syndrome a few months before her first birthday. She started the Medical Ketogenic Diet shortly after receiving her diagnosis. This is currently the only treatment for Glut1 as is aims to use ketone bodies instead of glucose to fuel her brain and body. While Mia has seen benefits from being on the diet ketones are an imperfect replacement for glucose. She is developmentally delayed compared to other kids her age. But each day she makes progress using a walker and learning to communicate with an AAC device. Mia loves the outdoors. She love jumping on her trampoline and swinging.
This year's fundraiser means a lot to our family. The possibility of new treatments gives us a lot of hope. Hope not only for Mia, but all individuals with Glut1. Hope that in the future we will have more options to help her grow and thrive. Matching funds for clinical trials for new treatments is HUGE! And your support can help make that happen. Thank you!
Team Members
Ethan Neumann
$13,612
113 Supporters
Joseph Ruggiero
$22,460
56 Supporters
Dalton Stoddard
$21,840
38 Supporters
JR
$33,071
24 Supporters
Finnigan
$8,512
80 Supporters
Macie
$15,055
43 Supporters
Mia
$9,535
59 Supporters
Sofia Reyes
$8,588.25
55 Supporters
Dara O'Reilly
$4,426.81
60 Supporters
Alex
$5,282
39 Supporters
Kenzie Hake
$3,530
45 Supporters
Georgia (Team NZ & Italy)
$3,930
40 Supporters
Story
$218,696
1k Supporters
145% of
$150,000 goal
$1k
Sofia Reyes received a $1,000 donation from C&J World Champion Taekwondo
about 13 hours ago
$100
Ethan Neumann received a $100 donation from Grace Lutheran Church
about 13 hours ago
$50
Macie received a $50 donation from Willie & Debbie Boyd
about 13 hours ago
$100
Claire Wray received a $100 donation from Greg, Debbie and Dalton Stoddardin honor of Randy Davidson
3 days ago
To our dear Beverly and Claire,
In Loving memory of your dear Father and Grandfather, Randy Davidson. What a sweet man...we know he will always remain in your hearts, as you are in ours. Sending you love and many hugs! We love you guys! ♥️
Claire Wray received a donation from AMY RILEYin honor of Randy Davidson
5 days ago
Claire loved this
ClaireThank you Amy! We’re so thankful for your kindness in honor of Randy. ❤️
5 days ago
$25
Ethan Neumann received a $25 donation from Terri Lundeen
9 days ago
Ethan, happy to support this important research. Hope you are doing well, Terri
$1k
Dalton Stoddard received a $1,000 donation from Laura and Todd Sullivan
11 days ago
Great to see you Dalton. Great job raising all this money for Glut 1. I will make sure Jack does not miss the next campaign.
Best Wishes!!
Mia loved this
DaltonAww!! Thank you so much Sullivans!! It was so great seeing you all and catching up! Looking forward to our next meet-up! ♥️
11 days ago
$50
Claire Wray received a $50 donation from Jim and Pat Hemlockin honor of Randy’s granddaughter . Daughters and all the family in the help and support of Glut 1…. Love you all and sending a hug thru this unique time
12 days ago
May all the wonderful memories your granddad and dad helped create for you continue to make you smile… MAY God’s PEACE help to comfort you