Together for PURA

Commemorating a Decade Since Discovery: Propelling Forward into the Future

Organized by PURA SYNDROME FOUNDATION

$202,577

561 Supporters

81% of $250,000 goal

Ava is Awesome

Fundraiser since Dec 2024

Share Ava is Awesome's Page

$9,975

16 supporters

199% of $5,000 goal

Ava is Awesome's Story

Our 13 year old daughter Ava was diagnosed with PURA syndrome in 2018 when she was 7 1/2 years old. The PURA community welcomed our family with wide open arms and we could not have been more grateful. We may be small in numbers but are the biggest community in heart and determination. Our PURA kids show us that every single day!

Team Leaderboard

Hattie's Heroes

2 members

$18,494

We Love Owen!

2 members

$15,545

Ava is Awesome

1 member

$10,025

Beethovan

1 member

$7,055

Taylor's Tribe

3 members

$4,090

Tilly's Warriors

2 members

$3,765

Brandon Strong

2 members

$3,494

Vivienne's Lemonade for PURA

1 member

$3,200

Micah's Magic

1 member

$3,050

Dax's Wolfe Pack

1 member

$1,902

Audrey’s Tribe

1 member

$1,232

Owen's Odyssey

1 member

$865

Kira's band

1 member

$855

Team Hayden

1 member

$851

Team Ship

1 member

$535

Team Ruby

1 member

$250

Go Gretchen Go

1 member

$229

Team Iowa

2 members

$115

TeamTru

1 member

$100

Trever’s Team

1 member

$50

Team Members

Owen's Climbers

$11,695

48 Supporters

Kris Magill

$9,405

46 Supporters

Ava is Awesome

$9,975

16 Supporters

Jack Manning

$2,552

55 Supporters

Taylor's Tribe

$3,475

30 Supporters

Tilly's Warriors

$3,640

28 Supporters

Vivienne's Lemonade for PURA

$3,100

26 Supporters

Liz Astridge

$3,850

14 Supporters

Brandon

$3,444.18

12 Supporters

Dax

$1,901.53

21 Supporters

Micah's

$3,050

12 Supporters

Sarah Anderson

$1,132

25 Supporters

Story

$202,577

561 Supporters

81% of $250,000 goal

Anonymous made a donation

about 21 hours ago

May Allah grant us all with PURA Jannah ! Inchallah!

Anonymous loved this

$150

Tilly's Warriors received a $150 donation from Jim Melendi

10 days ago

In honor of my dear friend, Michael Bookman.

Barbara loved this

$25

Tilly's Warriors received a $25 donation from Phyllis Rogoff

10 days ago

In loving memory of Mike Bookman

Anonymous and 1 other

$100

Sarah Falcone made a $100 donation

10 days ago

Barbara loved this

$100

Tilly's Warriors received a $100 donation from The Gibson Family

11 days ago

For Tilly in memory of Mike Bookman.

Barbara loved this

$25

Tilly's Warriors received a $25 donation from Shirley and Frank Entis

11 days ago

Sincere condolences on the passing of your beloved husband, Michael Kurt Bookman

Barbara loved this

$100

Barbara Cerra made a $100 donation

13 days ago

In honor of our Elaina Joy.

Barbara and 2 others

Nancy She is so beautiful and thank you!

13 days ago

$100

Brandon received a $100 donation from Mimi and Papa

15 days ago

With all our love.

Anonymous and 3 others

Together for PURA

By PURA SYNDROME FOUNDATION

Together for PURA

Commemorating a Decade Since Discovery: Propelling Forward into the Future

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