PURA Syndrome is celebrating a birthday! Ten years!!! There has been a lot of progress in the understanding of PURA Syndrome but there is still so much left to do.
The PURA Syndrome Foundation has big plans to continue its mission of helping our families and bringing together the best medical and research teams across the globe.
We all know that those are expensive endeavors. But what I want to tell you is that Audrey and her PURA brothers and sisters are worth it!
Please consider donating to this special fundraiser to kick start the next decade of discovery of PURA Syndrome. If you can give even $10, that would be amazing! This is a parent-run organization so every move forward has been made an inch at a time. So we appreciate and value even the smallest donation because we know that is one step closer to reaching our goal.
We love you all and thank you for your love and generosity.
